What is the YOUR RHEUM?
Your Rheum is a group for people in the UK aged 11-24 years who have a diagnosed rheumatic condition. Your Rheum provides an easy way for young people to understand and get involved in rheumatology research that is relevant to them. For example understanding why certain medications have side effects or developing tools such as website to help young people manage their condition.
The aim of this group is to make sure that the research that happens about conditions such as JIA, Lupus, Fibromyalgia, or Scleroderma means something to the young people it affects, reflecting what’s important to them and not just what is important to the researchers.
Your Rheum has been set up by the Barbara Ansell National Network for Adolescent Rheumatology (BANNAR). BANNAR is a group of rheumatology professionals (such as doctors and researchers) from across the UK who undertake research into rheumatology conditions. Vocal are a team of patient / public involvement and engagement professionals based in Manchester, who worked with BANNAR to setup and implement Your Rheum. BANNAR is funded by Versus Arthritis
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