Virtual Your Rheum meetings 2023

Coming soon

 

Face-to-face Your Rheum meetings 2023

* Saturday 17th June 1-4pm in London – travel expenses covered

Email Laura to attend your.rheum@manchester.ac.uk 

 

Individual online Your Rheum activities 2023

* 7th National Adolescent Rheumatology Symposium London Q&A session – deadline 6th June 2023 

Part of this event will include a live Q&A session, young people with rheumatic conditions can ask professionals their most important questions. Questions can be general (no personal questions), things relating to medicines, general wellbeing, mental health, fatigue, pain, physio, readiness for work and further life, ongoing research.. anything you would be interested in finding out more about. The panel will be made up of clinicians and researchers so this is a great time to get questions that are important to you answered! You can attend the event in-person or virtually and hear the answers live or, receive a recording via Your Rheum when it’s available.

What do you have to do? Hamza has made a menti page, you can submit as many questions as you want. Click the link (menti.com) and don’t forget to email Laura once you’ve submitted a question to get your certificate and voucher. Your.rheum@manchester.ac.uk

 

External opportunities

* 7th National Adolescent Rheumatology Symposium London

This adolescent and young adult rheumatology event will take place on 11th July 2023 during the day at UCL in London. The full meeting agenda is still to be confirmed however, young people are very welcome to attend this free event (in-person or virtually). Your Rheum members also have the opportunity to ask both researchers and health professionals questions (any question about rheumatology research and aspects of your condition/care) . If you would like to submit question(s) please email kathryn.o’brien@ucl.ac.uk by 1st June 2023 and let Kathryn know if you want your name attached to your question…Oh and if you can’t attend the event do not fear, a recording will be circulated to Your Rheum afterwards. 

* NHS England Youth Forum

If you are a young person (25 and under), please fill in and share these surveys created by the NHS Youth Forum! The results will be used to shape their recommendations to key figures in the NHS who can improve services for young people! linktr.ee/NHSYF

* Patient Voices – BMJ journals – Disease in Childhood

These articles can be written by young people who are or have been patients; their parents or carers; or jointly. They should contain messages that are thought-provoking and challenging for readers of ADC, along the lines of “What I wish you knew, and why.” Articles can be about any aspect of patient care and experience. From lessons for doctors from a single healthcare appointment to those from a lifetime of managing a chronic disease. They can be issue based, offer a new angle on a familiar situation, or ask controversial questions from the patient or parent’s perspective. They need not be about incidents where care and understanding was not optimal. They can also be about things that have gone well.

https://adc.bmj.com/pages/authors/#voicespatients 

* National Institute for Heath Research (NIHR) research opportunities

NIHR have put together a leaflet of current research opportunities across the UK for children and young people with JIA. Please click here for details.