Here are the current opportunities available for young people to get involved with.

Some opportunities are confidential due to the nature of the research and so will only be available to Your Rheum members via our closed Facebook Group. To access these opportunities you must apply to be a group member.

YOUR RHEUM VIRTUAL MEETINGS 

  • 11th August 11am – 12:30pm  Meet & Greet 
  • 23rd September 7 – 8:15pm

Email Laura if you would like to join us – your.rheum@manchester.ac.uk

YOUR RHEUM ONLINE ACTIVITIES

CAPTURE-JIA research project activity now live. Email Laura for details your.rheum@manchester.ac.uk 

EXTERNAL OPPORTUNITIES

  • JIA @ NRAS survey for 16s and over – Adult JIA experience of early treatment decision making

Calling all over 16’s who have been diagnosed with JIA in the last 5 years to take part in a 15-minute survey. Help us to better understand your experience and any concerns, to shape how these conditions could be managed for a better quality of life. Click the link below to get started;
https://survey.sogosurvey.com/r/61bcLH

  • JIA @ NRAS survey for parents/carers – JIA parent/carer experience of early treatment decision making

If you’re a parent or carer of a child diagnosed with JIA in the past 8 years, we’d love to hear from you. Taking part in this 10-minute survey will help us to better understand the experiences and any concerns of patients and their caregivers, to shape how this condition could be managed for a better quality of life. Click the link below to get started;
https://survey.sogosurvey.com/r/N8CGmy

  • Youth Advisory Panel at The Lancet Child & Adolescent Health

An exciting opportunity to join a youth advisory panel for the prestigious publication The Lancet Child & Adolescent Health!! This panel is for 16-24 year olds. To find out more click here

  • Centre for Adolescent Rheumatology Versus Arthritis at University College London

JDM and JSLE patients are invited to participate in an anonymous exploratory survey. The study will use a questionnaire to assess the impact of COVID19. If interested please visit the below link redcap.slms.ucl.ac.uk/surveys/?s=8RH

  • National Institute for Heath Research (NIHR) research opportunities

NIHR have put together a leaflet of current research opportunities across the UK for children and young people with JIA.

Please click here for details.

  • Starlight Youth Voices Project

Have you had a serious illness and/or been in hospital?

Would you like to share your ideas on how improve access to play and fun activities and make hospitals a better and more fun places to be in?

If so you might be interested in getting involved in this project by Starlight Children’s Foundation – a children’s charity that helps to improve children and young people’s access to play when they are seriously ill or in hospital. They are looking for young people to take part in research to help them understand what it’s like for children and young people to be seriously ill or in hospital; what activities there are for children and young people to play, relax and have fun; and what Starlight could do to improve these activities and help make hospitals better and more fun places to be in.

 For more information, see here!