Here are the current opportunities available for group members to get involved with. This list will be updated as opportunities become available.

Some opportunities are confidential due to the nature of the research and so will only be available to Your Rheum members via our closed Facebook Group. To access these opportunities you must apply to be a group member.

Contact: Your.Rheum@manchester.ac.uk to get involved in any of these opportunities.

We will be offering online activities that will be updated every 3-4 weeks.

The most recent online activity is centred about pain conversations that children and young people have with their healthcare professional. If you would like to take part, you can find it here! You will be awarded a voucher for completing the main activity, however the additional activity is a competition, so there can only be one winner! Good luck to all!!

Upcoming Zoom Meeting:

We are organising a meeting for Thursday the 30th of July at 7pm-8.15pm. The meeting will be an opportunity to ask myself, Janet or Katharine any questions that you may have. If you are interested in joining the meeting please email: your.rheum@manchester.ac.uk

 

EXTERNAL OPPORTUNITIES

A prospective investigation of the cyclical relationship between chronic pain and executive functioning across adolescence

A researcher at the University of Stirling would appreciate input from Your Rheum on the lay summary of this proposal, with respect to whether you find this project interesting, relevant and feasible. Any other feedback or comments on the proposal would of course also be welcome!

Please find the form here and please could you fill it out and send it back to me by the 12th of August.

National Institute for Heath Research (NIHR) research opportunities

NIHR have put together a leaflet of current research opportunities across the UK for children and young people with JIA.

Please click here for details.

National Survey

There is currently an anonymous national survey asking young people and their families what they think are the priority areas for rheumatology focussed research.

Now is your chance to make sure that the view point of young people is well and truly heard! Click here if you are interested in taking part.

Starlight Youth Voices Project

  •  Have you had a serious illness and/or been in hospital?
  • Would you like to share your ideas on how improve access to play and fun activities and make hospitals a better and more fun places to be in?

If so you might be interested in getting involved in this project by Starlight Children’s Foundation – a children’s charity that helps to improve children and young people’s access to play when they are seriously ill or in hospital. They are looking for young people to take part in research to help them understand what it’s like for children and young people to be seriously ill or in hospital; what activities there are for children and young people to play, relax and have fun; and what Starlight could do to improve these activities and help make hospitals better and more fun places to be in.

 For more information, see here!

Visit Planet DIVOC-19

A new digital comic has been launched by Vocal that explores a pandemic. It includes articles from members of Voice Up, Manchester’s Young Person’s Research Advisory Group.

Planet DIVOC-19 is a huge collaborative effort with stories and artwork from acclaimed comic creators and the involvement of researchers from a wide range of disciplines. The first expert interviewed by the young people was the Government Chief Scientific Adviser, Sir Patrick Vallance.

The comic is a sci-fi satire in which all young adults between the age of 16-25 have been transported to a new planet because earth is at risk of an extinction level event. In the first chapter, 23 year old Sanda discovers that she’s been moved to safety by the Board of Adversity Scientists for Intergalactic Leadership’ (BASIL), led by a charismatic and fearsome alien named Ardo…

Find out more on our website and see the brilliant trailer here!

NCEPOD Transition Study: Online Young Person and Parent Carer Scoping Survey

There is a new survey that is for completion by young people/parent carers of young people:

  • Under 25 years of age
  • With any condition that requires ongoing healthcare management
  • At any stage of transition from child to adult health services

This survey is to gather the views of young people/parent carers on the issues we might need to explore in more detail as part of the study. If you would be interested in taking part, click here!