Here are the current opportunities available for group members to get involved with. This list will be updated as opportunities become available.
Some opportunities are confidential due to the nature of the research and so will only be available to Your Rheum members via our closed Facebook Group. To access these opportunities you must apply to be a group member.
Contact: Your.Rheum@manchester.ac.uk to get involved in any of these opportunities.
We will be offering online activities that will be updated every 3-4 weeks.
The latest online activity focuses on “Investigating young people’s perceptions about research into reducing/stopping biologics”.
Many young people with arthritis need treatment for many years. Some young people are treated with biologic treatments (e.g. etanercept, adalimumab, tocilizumab, abatacept, rituximab) which are newer group of medicines that are like the antibodies produced by the human body to fight infections. Biologic treatments can be very useful in easing the symptoms of arthritis but can also make young people more prone to infections or affect the cells in the blood. Researchers are looking into understanding if it is safe to lower the dose of this biologic treatment or even stop it in young people who have had no symptoms of arthritis for a while.
We are interested in exploring your views as well as concerns about studying this in a clinical trial. If you would be interested in taking part, please click here. You will be rewarded for your time!!
The previous online activity is centred about pain conversations that children and young people have with their healthcare professional. If you would like to take part, you can find it here! You will be awarded a voucher for completing the main activity, however the additional activity is a competition, so there can only be one winner! Good luck to all!!
Upcoming Zoom Meeting:
We are organising a Christmas meeting for Thursday the 17th of December at 7pm-8.15pm. The meeting will be an informal and fun one, which is definitely well deserved after this year! We will be hosting a quiz, plus there will be a competition to see who has the best Christmas jumper/jewellery/outfit.
If you are interested in joining the meeting please email: email@example.com
We look forward to seeing you there and if you are unable to join, we send our warmest seasons greetings and hope you have a fabulous New Year!
Have your say in a new creative project about MSK conditions!
Vocal are looking for young people aged 16-25 who have an MSK condition to take part in an online discussion and help to shape a new creative project. For more information please click here. You will be compensated for your time!!
National Institute for Heath Research (NIHR) research opportunities
NIHR have put together a leaflet of current research opportunities across the UK for children and young people with JIA.
Please click here for details.
There is currently an anonymous national survey asking young people and their families what they think are the priority areas for rheumatology focussed research.
Now is your chance to make sure that the view point of young people is well and truly heard! Click here if you are interested in taking part.
Starlight Youth Voices Project
- Have you had a serious illness and/or been in hospital?
- Would you like to share your ideas on how improve access to play and fun activities and make hospitals a better and more fun places to be in?
If so you might be interested in getting involved in this project by Starlight Children’s Foundation – a children’s charity that helps to improve children and young people’s access to play when they are seriously ill or in hospital. They are looking for young people to take part in research to help them understand what it’s like for children and young people to be seriously ill or in hospital; what activities there are for children and young people to play, relax and have fun; and what Starlight could do to improve these activities and help make hospitals better and more fun places to be in.
For more information, see here!
Visit Planet DIVOC-19
A new digital comic has been launched by Vocal that explores a pandemic. It includes articles from members of Voice Up, Manchester’s Young Person’s Research Advisory Group.
Planet DIVOC-19 is a huge collaborative effort with stories and artwork from acclaimed comic creators and the involvement of researchers from a wide range of disciplines. The first expert interviewed by the young people was the Government Chief Scientific Adviser, Sir Patrick Vallance.
The comic is a sci-fi satire in which all young adults between the age of 16-25 have been transported to a new planet because earth is at risk of an extinction level event. In the first chapter, 23 year old Sanda discovers that she’s been moved to safety by the Board of Adversity Scientists for Intergalactic Leadership’ (BASIL), led by a charismatic and fearsome alien named Ardo…
Find out more on our website and see the brilliant trailer here!
Returning to School Emotional Wellbeing of Young People
Researchers at the University of Liverpool have come up with a survey aimed at people who are returning to secondary school/sixth form in September. We really want to get as many views as possible on returning to school and on a potential research study https://forms.gle/PXRg9TDCLjKmCRKX8
Emotional Wellbeing of Young People
Researchers at King’s College London are running a study to understand how young people are managing their emotions during the coronavirus pandemic, which involves answering some questions online over the next few months. Anyone aged between 12 and 25 can take part and they will be reimbursed with vouchers for their time. For more information, or to take part, please visit: https://kcliop.eu.qualtrics.com/jfe/form/SV_etGSQ2B8fRS44a9
We’ve also put together a flyer which has more information!