TOOLKITS
GenerationR Alliance & eYPAnet toolkit This toolkit is designed to help researchers/health professionals or similar professionals set up and run a Young Persons Advisory Group, allowing the voices of children and young people to be heard in research
USEFUL ORGANISATIONS
INVOLVE is funded by the National Institute for Health Research (NIHR) to support public involvement in NHS, public health and social care research
About INVOLVE supporting public involvement in NHS, public health and social care research | INVOLVE
GenerationR Alliance is a National Network of Young People’s Advisory Group’s (YPAGs) based across the UK
VIDEOS
Videos created by young people talking about involvement in research
INVOLVE animated film by Tom Grew about his experience with Hodgkins lymphoma diagnosed aged 18 years and subsequent involvement in research
KidsCan, University of British Columbia, BC Children’s Hospital and the Child & Family Research Institute in Vancouver KidsCan is a youth research engagement initiative which directly involves youths aged 14-17 as advisors and partners in the research and development of innovative mobile-based solutions to the health challenges they face. They are active participants in transferring scientific knowledge from clinicians and engineers to young people, rather than being passive receivers of knowledge
National Children’s Bureau NCB’s young research advisors contribute their views on various research topics. This video explains the role they play and how they help the NCB Research Centre to see research subjects from a young person’s perspective (2012)
Nuffield Council on Bioethics this clip shows highlights from a film produced by Helter Skelter Media for the Nuffield Council on Bioethics. It shows young people discussing the ethics of research studies involving children, during workshops held at a junior school, a secondary school, and a sixth form college in the autumn of 2013
YOUR RHEUM 