How can researchers work with the Group?

Your Rheum is a UK-wide young persons advisory group for people aged 11-24 years, who have volunteered to provide their thoughts, ideas and opinions on current adolescent and young adult rheumatology research. Please have a read of the website for further information on the Group’s background and set-up.

Your Rheum can help you with all stages of your research project from generating research questions, writing the grant application, through to evaluating the impact of your research.

We believe in a collaborative approach between the Group and Research and so you will engage the Group as a partner

You can submit a request to work with the Group by completing an expression of interest form. You can download a form here research expression of interest form and return it to:

What do I need to consider when working with the Your Rheum?

  • The Group consists of members aged between 11-24 years, therefore you should consider what kind of activity would be suitable to bring to the group e.g. consider how you would like to introduce and describe your study and PPI activity, what language is appropriate to use.
  • Have a clear aim of what you would like to achieve from working with the Group – this aim can be shared with the Group so they can have a greater understanding of what the outputs of their efforts should be.
  • As with all research user groups, there are certain limitations on Group members’ time and availability, therefore you should consider the amount of time needed to complete your proposed activity. Activities that take too much time may not be feasible. We recommend using sites like “Survey Monkey” for your activity instead of long-chunky text.
  • The Group will meet around twice a year face-to-face to take part in research involvement activities. Due to the current COVID-19 pandemic, we are unable to facilitate face to face meetings. We have temporarily replaced these with virtual zoom meetings, which we host roughly every 2 months. The Group will also be available  virtually either online or via the phone. The Group organisers will decide whether your activity will be completed during a face-to-face meeting or virtually. This will be based on your deadlines compared to meeting dates, the type of activity, the  time needed to complete the task and who you need to take part.
  • All opportunities presented to the Group organisers by researchers will be considered, however please be aware priority will be given to the following:
    • BANNAR funded projects
    • BANNAR members
    • Multi-site projects

Please note at present there is limited availability to work with researchers outside of BANNAR due to capacity and funding. Please do still register your interest though and the group organisers will contact you if this changes in the future.

  • While the Group Organisers will try to meet specific needs they cannot guarantee young people of specific ages or locations will be involved in your activity. If you have specific requirements we suggest you contact the Group Organisers  to discuss your needs further.
  • To encourage further participation and to ensure our members feel valued, we ask that all researchers provide feedback on the results of the study and/or the impact the Group’s activities have had on the research project. This does not need to be extensive.

To get in touch about a research opportunity for the group, or if you would just like more information please visit our Contact page.