This section of the website contains lists of resources you may find useful. Please note that these resources are external to the BANNAR YPAG and so we do not have any control over their content.

One Step At A Time 

Is a new organisation launched earlier this year with the mission to increase support for children and young people with disabilities and/or any long term health conditions.

Who We Are –  we are Ross, Ally and Beth – we’re three university students and group of friends, with a mix of long term health conditions, who from our personal experiences and journeys, know there is a lack of support (and resources) for young people in similar situations to us….and also for teachers in schools working with young people.

What We Do – One Step At A Time have developed activity packs and run workshops in schools, which are aimed at ALL school aged children. The aim is to start conversations and raise general awareness on how peers can support those they know in class, or out of school, with disabilities and/or long term health conditions. We work with a variety of age groups from p5,6,7 ( last years of primary schools) to secondary education.  So far, we have held 3 workshops across the UK and have received brilliant feedback with two more workshops in schools in the next few weeks. We are also engaged in conversations with Glasgow and Clyde Scouts about holding workshops with Cubs, Scouts and Explorers. However, we know we have a lot to learn.

Get In Touch – We are aiming to target as many people as possible and so if you are interested in helping out or want to find out more about what we do such as using the resources we have developed, get in touch (details are below). We also have a blog in which we tackle a different topic each month (this month is socialising) and posts are written from multiple perspectives, so there is definitely scope for anyone who wants to write something for the blog to do so.

As we’ve said, we’re a brand new organisation learning the ropes. If you would like to get involved, want to find out more, or just want to follow/subscribe to keep updated.

Find us on Facebook – search for One Step At A Time ( https://www.facebook.com/One-Step-At-A-Time-2303564063199616/?modal=admin_todo_tour  )

Blog – https://onestepatatime.family.blog/2019/06/24/introducing-us/?fbclid=IwAR2WmuvGQr29xm6rFXYCMBAeuenSHv-v9WqplLi9Okdf_afM3ULhZCnmT3A

You can also send an email to osaat00@gmail.com

Resources for additional support

Versus Arthritis – The leading UK funder of research into the cause, treatment and cure of arthritis and care working with and for all people with arthritis.

Lupus UK  – national charity helping people with lupus.

National Rheumatoid Arthritis Society (NRAS) –  provide information and support for people with rheumatoid arthritis (RA) and juvenile idiopathic arthritis (JIA), their families, friends and carers, as well as health professionals with an interest in RA

Arthur’s Place -A magazine and social network for young adults with rheumatic conditions where you can find facts about arthritis, helpful tips and tools for dealing with everyday life, wellness guides, handpicked apps and real life stories.

Resources to help understand research

Understanding Health  Research – a tool for making sense of health studies. It also has lots of useful information such as how to read a scientific paper and how to judge if health information is credible.

NHS Choices: Behind the Headlines – Behind the Headlines provides an unbiased analysis of health stories that make the news, to help you understand the meaning behind them.

Resources about research involvement

Youtube video of The SickKids Children’s Council speaking about  the right to give an opinion, for adults to listen, and to be taken seriously.

What do young people with rheumatic conditions in the UK think about research involvement? A qualitative study – A recent publication exploring young people’s thoughts and opinions on involvement in research.

Models of good practice when involving young people in health-related research – tool for researchers and health professionals.

Resources on Genomics

Are you interested in learning more about DNA and DNA research? If so, the below links might be useful to you, especially the first link to a YouTube video.

https://www.youtube.com/watch?time_continue=25&v=sn3_FlEbe0U

www.genomicseducation.hee.nhs.uk

https://www.genomicseducation.hee.nhs.uk/education/core-concepts/what-is-genomics/