This section of the website contains lists of resources you may find useful. Please note that these resources are external to the BANNAR YPAG and so we do not have any control over their content.

Resources for additional support

Versus Arthritis – The leading UK funder of research into the cause, treatment and cure of arthritis and care working with and for all people with arthritis.

Lupus UK  – national charity helping people with lupus.

National Rheumatoid Arthritis Society (NRAS) –  provide information and support for people with rheumatoid arthritis (RA) and juvenile idiopathic arthritis (JIA), their families, friends and carers, as well as health professionals with an interest in RA

Arthur’s Place -A magazine and social network for young adults with rheumatic conditions where you can find facts about arthritis, helpful tips and tools for dealing with everyday life, wellness guides, handpicked apps and real life stories.

Resources to help understand research

Understanding Health  Research – a tool for making sense of health studies. It also has lots of useful information such as how to read a scientific paper and how to judge if health information is credible.

NHS Choices: Behind the Headlines – Behind the Headlines provides an unbiased analysis of health stories that make the news, to help you understand the meaning behind them.

Resources about research involvement

Youtube video of The SickKids Children’s Council speaking about  the right to give an opinion, for adults to listen, and to be taken seriously.

What do young people with rheumatic conditions in the UK think about research involvement? A qualitative study – A recent publication exploring young people’s thoughts and opinions on involvement in research.

Models of good practice when involving young people in health-related research – tool for researchers and health professionals.

Resources on Genomics

Are you interested in learning more about DNA and DNA research? If so, the below links might be useful to you, especially the first link to a YouTube video.

https://www.youtube.com/watch?time_continue=25&v=sn3_FlEbe0U

www.genomicseducation.hee.nhs.uk

https://www.genomicseducation.hee.nhs.uk/education/core-concepts/what-is-genomics/